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Testimony on Mandatory HIV Testing.
By Maretta J. Short, NOW-NJ President
Thursday, June 7th, 2007
Re: Bill S2704
Good afternoon and thank you for allowing me the time to
speak today.
My name is Maretta Short and I am the President of the
National Organization for Women of New Jersey (NOW). I am
here to express our position regarding Mandatory HIV Testing for
pregnant women and newborns.
Passing the “Mandatory HIV Testing for Pregnant Women and
Newborns bill is not a “NO Brainer,” as publicized.
Bill 2704 gives the public the opinion that testing newborns
will prevent them from getting AIDS. Based on our findings
the HIV status of a newborn cannot be accurately established
until 15-24 months after birth, therefore, the testing of
newborns effectively establishes only the HIV status of the
mother.
Far reaching efforts at the federal, state and local levels
target child-bearing women through their newborns for mandatory
testing for HIV/AIDS, putting pregnant women in a category
separate from all other individuals;
Through my personal opinion as a Black women I am concerned
about this mandatory testing and the impact it will have on my
younger pregnant black sisters and all younger women.
The groups most targeted will be women of color. Black
women have been historically abused by medical facilities in the
United States and so have Black men. For example, There
were the Black men in Tuskegee Institute who were used to test
serum to cure syphilis and died. Years ago black women who
lived in the south were sterilized without their permission and
against their will. Civil rights activist, Fannie Lou
Hamer was the first Black Delegate to attend the Democratic
Convention in Atlantic City New Jersey. She went into a
Mississippi hospital for a scraping and when she came out of the
hospital room she was informed by the doctors that they had
given her a hysterectomy without her permission and against her
will. Research has proven that voluntary testing is
working.
Mandatory testing would discourage pregnant women from
seeking medical attention. 75% of newborns testing
positive at birth eventually shed the HIV antibodies and,
therefore, are put in jeopardy because their mothers are afraid
to seek routine health care and immunizations; meanwhile healthy
babies are getting drugs that the medical community has not
fully tested for side effects.
In addition, a clause in bill 2704 states that "A woman will
not be denied appropriate prenatal or other medical care because
she refuses to be tested for HIV." Why include this clause
if it's not going to be interpreted as something else later?
In some cases I have read about pregnant women who refused
mandatory testing and they were sought after legally for being
negligent and forced to give up custody of their children.
And there's another troubling line in the bill about
collecting information about pregnant women who have given their
written refusal to be tested. What will be done with the
information?
We hold that women's privacy rights and choices are as
constitutionally valid as those of any other citizen, regardless
of a woman's reproductive status.
Currently, a pregnant women in NJ is asked whether she wishes
to "opt-in" for getting the HIV screening. The women have
been concerned and in agreement with the testing.
Voluntary testing is working. Why make it mandatory and
who's going to pay for the screening?
The main reasons for the increased rate of AIDS in our
communities is the lack of access to quality health care.
Millions and millions of dollars were directed to low risk areas
when the funding should have gone to high risk areas.
There are no women’s health clinics and hospitals are shutting
down.
And according to the NJ Hyacinth Foundation “Since
the reauthorization of the Ryan White HIV/AIDS Treatment
Modernization Act of 2006, New Jersey has seen a 39% decrease in
federal funding totaling 9 million dollars. As a result,
key supportive services for people living with HIV/AIDS that are
critical to the access of care, such as case management and
transportation, have been cut. Across the state, several
essential services have been eliminated, including meal delivery
to 150 homebound patients, legal advocacy to 200 clients, mobile
medical outreach to 300 high-risk patients, housing for 150
people, and residential substance abuse treatment for 120
patients.
We are opposing all efforts to introduce into state
legislatures, city, county, or federal governments any bills or
ordinances whose effect would be to limit the civil rights of
persons with HIV/AIDS, persons with HIV antibodies, or persons
in groups thought to be at higher risk of infection than the
general population, including mandatory testing, reporting and
quarantine.
The many variations of mandatory testing programs that have
been proposed do not provide any necessary or useful information
and/or medical services for women and newborns that could not
otherwise be obtained voluntarily.
Mandatory testing places women and their newborns in an
adversarial relationship with their physician(s), the medical
community, and possibly the father of the child.
NOW reaffirms its emphasis and its opposition to mandatory
testing, including what amounts to de facto mandatory testing of
women through their newborns. We will initiate a campaign
through the media and NOW chapters to educate the public and
members about the real issues and real dangers that mandatory
HIV testing poses to the civil rights of women and newborns.
Mandatory HIV testing for pregnant women and new borns
legislation may be a done deal but it is not “A No Brainer!”
Thank You for your time.
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